Patient and Family
Engagement in Research
What are the Benefits?
Engaging patients and families with lived experiences have many positive impacts on research studies!
Here are just some examples identified by Vat and colleages...
Benefits of Patient Engagement in Research
1. Increases alignment between study priorities and patient needs.
2. Improves feasibility and acceptability of study protocols.
3. Enhances participant recruitment and retention.
4. Makes consent forms clearer and more user-friendly.
5. Promotes inclusion of meaningful patient-reported outcomes.
6. Encourages more diverse and inclusive study populations.
7. Strengthens scientific validity through patient insight.
8. Improves clarity of study materials for participants.
9. Boosts ethical robustness by promoting respect and inclusion.
10. Builds transparency and trust in research processes.
11. Informs higher quality decision-making at all levels.
12. Improves the quality of ethics and regulatory submissions.
13. Increases public trust and credibility of research.
14. Raises adoption rates for patient-informed innovations.
15. Reduces development delays and accelerates timelines.
16. Increases cost-efficiency through fewer protocol changes.
17. Fosters ber relationships between researchers and communities.
18. Empowers patients through meaningful involvement.